I want you to imagine a TV show happening with a split screen, like they did on 24 and... that other TV show, I can't remember what it was called. Both screens are showing the story of the same protagonist.

Screen A shows her going about her life. It's not perfect, but it's okay. She has some trouble with her health, but she has friends and family that support her. She lives in a country where the government is still, more or less, committed to providing a safety net for those whose health compromises their ability to work. There's still enough left of the National Health Service that she doesn't have to deal with medical bills. She's very lucky and she knows it.

Screen B shows a similar story. The bones of the plot are the same. Only on this side of the screen, her friends and family either don't believe in her health problems - oh, she's just lazy. It's just psychosomatic. She's always had an overactive imagination - or else they resent her. My health problems are worse than hers and I hold down a fulltime job. She's just playing the system. I'm a better person than she is because I wouldn't claim welfare even if my country offered it. They make sympathetic noises out of courtesy or pacifism, but they're sick of her whining. They wish she'd just disappear. Her doctor believes she's invented her symptoms out of whole cloth to swindle the government; anything she isn't outright inventing can easily be ascribed to her weight or the fact that she's a hysterical female who reads up her health problems on the Internet. He's convinced there's nothing wrong with her a strict diet and exercise regime wouldn't cure.

On Screen A, she went through some hassle with her welfare a while ago, but it was just routine. It was hard for her, but it wasn't personal. It's hard for everyone and they can't afford to be paying for anyone that could manage without it; and she succeeded in proving she couldn't, so that was all right.

On Screen B, there's a man in a local government office who's made it his personal mission to wipe this woman off the face of the earth. He supposes he could ambush her out walking and stab her, or pay someone else to do it, but he's afraid of the consequence of breaking the law, and besides, that would let her off too easily. He wants her to really suffer, and he knows just how to do it. He's going to use every legal means in his power to strip her of all support and dignity - after all, who does she think she is that his taxes should support her? She's just scrounging scum, she doesn't deserve it. So first he insists she isn't sick at all, and she has to spend half a year on one-third of her (already low) income while she waits her turn to prove to an independent tribunal that she really is. His first attempt was foiled at the tribunal stage; but that's all right. He has all the time in the world and all the resources at his disposal. He can require her to prove herself again and again and again until either he gets the result he wants or she can't face fighting another battle. When he finally succeeds in forcing her into homelessness, he'll laugh and perhaps buy all his mates drinks in the pub to celebrate.

On Screen B, the woman's neighbours hate her; she thinks she's better than they are because she has a posh accent. She reads books and she looked horrified when they bred their fifth litter of Staffie puppies and offered to sell her one. They take delight in filling her recycle bin with rotting garbage. Every time a dog barks in the neighbourhood they telephone the council and complain about her dogs, even though they're pretty sure that was some other dog they heard. They'll be delighted if she gets evicted or someone comes and takes her dogs away; who does she think she is anyway, taking up a nice flat that could have gone to someone deserving. She'll get what's coming to her.

...See, the thing is, I'm not stupid. I'm not completely delusional. I know that Screen A is telling something much closer to the truth. It's just that all my emotions, all my gut reactions, are coming straight from Screen B. And I don't know how to make it stop. I'm terrified every time I walk out of my front door, these days. I'm terrified to speak to people even though I know, really, that they don't actually hate me. This is half the reason I haven't been posting. The other half is that, after an initial first flush of feeling better, the levothyroxine is having almost no effect again; it's a rare good day when I can do as much as walk to the damn corner shop and I'm a drooling brainfogged idiot approximately four days out of seven.

I am also in the middle of switching antidepressants; this required me to wean myself completely off the Zoloft before I can start taking the Seroxat again. Which might, now I think of it, have something to do with the present state of red-alert panic paranoia. It's not usually quite this bad. I just wanted to get it down while I could. I'm now going to hit the post button before I change my mind.
il_mio_capitano: (Default)

From: [personal profile] il_mio_capitano


*hugs* don't feel like it's enough so I'm sending my love too. You will get through this. I know you can.

From: [identity profile] ulva.livejournal.com


You might want to check those anti-depressants because some interfere with thyroid medications. The SSRI ones nullify the effect of Levthyroxine. Zoloft is one medication that interferes like that for instance. I can't believe they put you on Levthyroxine and didn't change the anti-depressant medication. Levthyroxine isn't happy shiny people, but it's basically worthless when you're on a SSRI medication. The paranoia is probably due to insufficient medication and possibly the depression is too. See, many people are on anti-depressants for years before they get a Hashi's diagnose because of their depressions. Depression is a natural effect of having a thyroid not functioning like it should. Either way you would do a lot better if you upped the medication and went on an anti-depressant which isn't an SSRI type of medication.

I recognise this. All those weird mood swings and reluctance to interact with people; paranoia even, that's been my share too. It's... difficult to live with. I feel for you, I really do. *hugs* A lot.
ext_15855: (Default)

From: [identity profile] lizblackdog.livejournal.com


I did talk to the doctor about it. I'm due for another appointment... er, this week or next week sometime, as soon as I get round to making one. He gets kind of snotty at me when I show signs of having educated myself about any of this, though, and I'm scared to antagonise him. I badly need him to be on my side.

From: [identity profile] ulva.livejournal.com


That makes me so angry! He has no right to get all snotty because you decided to educate yourself! What is it with doctors? Isn't it a good thing that people try and educate themselves so they can do the best of their situation? But no, there are many soar toes to thread on in the medical establishment.

Problem is, they feel they are under pressure. the past 5 years more and more people are voicing their unhappiness with the standard treatment available. However, most doctors have been taught something that hasn't been researched seriously on since the 50's but it is the undisputed truth, or what most think is the undisputed truth. More research is coming and they show that it's not so simple, not that black and white, but for the general GP or even endocrinologists, this isn't even known.

They live with the unpleasant possibility that the treatment they have given their patients for decades could be insufficient. No one wants to be accused of giving people inadequate care, so many are fighting tooth and nails to defend themselves and will not change or listen to a patient saying something that isn't complying with what they have been taught. They treat blood tests, not patients and if anyone says they still isn't feeling well, they are depressed, have developed fibromyalgia, chronic fatigue disorder, rheumatic issues and possibly hypochondria. They don't want to accept that people who say they don't do well and have physical issues to back it actually still have hypo problems.

It's a hopeless situation. I no longer see a doctor because I couldn't find someone who listened. The government health board has also made it more difficult to get dessicated thyroid medication. I can't obtain it legally so I turned to the illegal way. I know many in Britain do too for the very same reasons. Sweden and the UK are quite similar when it comes to this I'm afraid. I hope he can at least look in to putting you on a non-SSRI medication.
ext_15855: (Default)

From: [identity profile] lizblackdog.livejournal.com


Add to that the possibility that I'm imagining his attitude because I'm paranoid as fuck right now, which is a very real possibility too. I feel like I can't win whatever I do.

From: [identity profile] ulva.livejournal.com


I don't think you're imagining that bit. It feels a lot worse when you're doing poorly. I have met the same attitude since I was diagnosed. I've had doctors write in my journal that I was aggressive, irrational and under consideration for psychiatric treatment. I was also a hypochondriac. This was when my TPO-s was 2000 (range below 70) and my other blood tests clearly showed I was hypo and had a big swollen thyroid gland, clearly visible. I wasn't aggressive. I was begging them to give me sick leave because I couldn't get out of bed.
ext_15855: (Default)

From: [identity profile] lizblackdog.livejournal.com


also, the last lot of blood tests? apparently everything is now in normal range. I'm like - THEN WHY DO I STILL FEEL LIKE SHIT?

From: [identity profile] ulva.livejournal.com


My range was fine and I couldn't walk. Many can't just have T4 only and function. I need all 5 hormones the thyroid produces or I can't do anything at all. I'm a vegetable. And the range is BTW vast. TSH is usually between 0,4-5,0 which is crazy.
ext_15855: (Default)

From: [identity profile] lizblackdog.livejournal.com


He did order a more thorough set of blood tests when I told him that, so he gets points for that. I'm just haunted by teh conviction that he sees me as a hysterical timewaster.

From: [identity profile] ulva.livejournal.com


Well it's his damn job. He's the doctor. He needs to treat you to the best of his ability. He has take the doctors oath so there's no getting around it.
wychwood: chess queen against a runestone (Default)

From: [personal profile] wychwood


That all really sucks. I'm glad you're hanging in there, though, even though it's hard; it's good to hear from you when you can manage it.
ext_15855: (Default)

From: [identity profile] lizblackdog.livejournal.com


<3 <3 <3

I'm still reading everyone. It's just I have to win a fight with myself before I can remind my friends list I'm still alive.

From: [identity profile] vanessalp.livejournal.com


Glad to see you posting again. Just remember that we're all on your side.
ext_15855: (Default)

From: [identity profile] lizblackdog.livejournal.com


thank you darling. I'm sorry I haven't been commenting on you either; I have been reading and sending love. Just my brain seizes up when I try and communicate.

From: [identity profile] ghost07.livejournal.com


I wish I was smart enough to say something intelligent. I'm sorry I'm not, but I can, at least, send you {{{HUGS}}} anyway. So do my cats.

From: [identity profile] aheadsuretospin.livejournal.com


I really wish there was a way to express that I could've honestly written all this. That is exactly what my head space is like all the time.
ext_15855: (Default)

From: [identity profile] lizblackdog.livejournal.com


sucks, doesn't it? And you know it's not true. I know it's not true. I just haven't succeeded in stopping myself from feeling it.
ext_15855: (Default)

From: [identity profile] lizblackdog.livejournal.com


Also I need to tell you this because you are the only person I know that even watches Grey's Anatomy.

Miranda Bailey and my sister Tara? SO NEARLY THE SAME PERSON IT HURTS.

From: [identity profile] orac-zen.livejournal.com


You're among the most remarkable and extraordinary and inspirational people I know. Anyone who thinks you're anything other than fabulous isn't worth bothering with.

I hope the med stuff gets sorted very soon. In the meantime, do not ever believe you're anything other than brilliant.

*** hugs, prayers, good thoughts ***


(Oh, and pop back to TBBS when you get a moment. A lot of people were very pleased to see you drop by.)
ext_15855: (Default)

From: [identity profile] lizblackdog.livejournal.com


I certainly shall, though not today because I'm completely out of energy.

thank you. Love you <3

From: [identity profile] baranduyn.livejournal.com


**hugs** Because I have nothing else.

Except no one is entitled to judge whether or not your pain is merited. Those who do such are merely entitled to go fuck themselves with a used bog brush.
ext_15855: (Default)

From: [identity profile] lizblackdog.livejournal.com


I'm pretty certain no one is really doing that; definitely no one I think of as a friend. I just can't successfully convince my emotional responses to believe it, you know?

and thank you <3

From: [identity profile] huntingdon.livejournal.com


The more you interact with people the more you'll realise screen A is the more real, and the more you'll be nudged out of the screen B version.

As OZ says - there was a lot of pleasure at seeing you back on trekbbs.
ext_15855: (Default)

From: [identity profile] lizblackdog.livejournal.com


this is true. it does take a lot of energy though, and I rarely have that.

thank you <3
redcirce: Buffy/Willow from BtVS hug (buffy & willow hug)

From: [personal profile] redcirce


I don't have any useful advice, but I am so sorry that you are feeling this way. I hope you have luck switching the screens in your head.

::hugs::
ext_15855: (Helen and Fifi: Love Me)

From: [identity profile] lizblackdog.livejournal.com


It's... calmer than that most of the time. It's always there but on my good days I can ignore it more easily. I'd just been having a particularly bad week and it rose over my head and flooded my journal. I think I feel better for getting it out.

Thank you <3

From: [identity profile] yesididit.livejournal.com


omg you could be reading my mind for how much of this goes thru my head!!! i'm so familiar with KNOWING its not true, but that knowing doesnt stop the FEELING that it very much is true. and i cant convince myself otherwise no matter how much i KNOW its not true. stupid fucking paranoia. i'd like to kick it if i could.

heres hoping your medication changeover goes as quickly as possible with the least amount of side effects. i hate changing meds. *hugs*.
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